What matters most: Qualitative investigation of goals and values in a diverse sample of patients with advanced cancer.

Authors

null

Ashley Aller

Department of Hematology/Oncology, The Permanente Medical Group, San Francisco, CA

Ashley Aller, Aida Shirazi, Andrea Altschuler, Karen Hauser, Francisco Martinez, Jed Abraham Katzel, Amy Ying Ju Lin, Tyler Jones, Peggy T Lim, Sue May Yen, Hannah Whitehead, Raymond Liu

Organizations

Department of Hematology/Oncology, The Permanente Medical Group, San Francisco, CA, Department of Graduate Medical Education, Kaiser San Francisco, San Francisco, CA, Kaiser Permanente Division of Research, Oakland, CA, Department of Medicine, Kaiser Permanente Northern California, San Francisco, CA, The Permanente Medical Group Consulting Services, Oakland, CA, The Permanente Medical Group (Kaiser Permanente), San Francisco, CA

Research Funding

No funding received
None.

Background: Goals of care conversations (GOCC) are a complex part of patient-focused care. Current understanding of GOCC content is limited to post-hoc patient satisfaction surveys and focus groups evaluating end-of-life advance care planning physician-patient interactions, and documentation. We investigated patient goals and values through standardized GOCC documentation by oncologists in patients with advanced cancer. Methods: This pilot qualitative analysis of patient goals and values included all adult patients > 18 years with advanced recurrent or stage IV cancer seen at Kaiser Permanente San Francisco with an oncologist documented GOCC between 1/1/2022 to 5/14/22. Our team developed a templated GOCC automated phrase (Smartphrase) within our electronic medical record (EMR), with a selection tab that included a listing of common patient goals and values and an option to add free text. Team members reviewed each patient’s initial GOCC content was reviewed for frequently occurring themes consistent with goals and values. Results: A total of 178 patients had EMR documented GOCC, with a mean of 1.8 GOCC per patient. These patients were 51% (n = 94) female, with a median age of 68.5 years old. The population was racially diverse with 46% identifying as White, 32% Asian/Pacific Islander, 13% Black, 8% Hispanic/Latino, and 1% Other. The most common cancer types included breast (19%, n = 34), lower GI (16%, n = 29), and thoracic (14%, n = 25). Family members were present in 35% (n = 63) of GOCC. Table summarizes thematically grouped goals and values. Conclusions: Our findings highlight the importance of GOCC in routine oncology visits. Our standardized documentation tool for GOCC prompted medical oncologists to identify what matters most to patients with advanced or recurrent cancer regarding their values and goals related to care and quality of life. Among the wide range of responses, we identified that the most important goals and values to our patients include avoiding pain and suffering, physical independence, and living as long as possible. In contrast, patients rarely identified comfort-only treatment as a priority. This tool can guide goal-concordant care at initial onset of the cancer journey and be revisited as these conversations evolve over time. Future investigation is needed to understand how GOCC goals and values identified early impact patient satisfaction, change over time, influence treatment decisions, and potentially lead to an evolution in standard for goal-concordant care.

Goals and values within initial standardized EMR GOCC documentation.

Goals and Values
Number of Responses (% of patients)
Avoid Pain and Suffering
71 (40%)
Physical Independence
69 (39%)
Living as Long as Possible
68 (38%)
Mental Clarity
39 (22%)
Ability to Communicate
34 (19%)
Avoid or Minimize Being in the Hospital
17 (10%)
Comfort Focused Treatment Only
6 (3%)
Total Number of Responses
304

Disclaimer

This material on this page is ©2024 American Society of Clinical Oncology, all rights reserved. Licensing available upon request. For more information, please contact licensing@asco.org

Abstract Details

Meeting

2022 ASCO Quality Care Symposium

Session Type

Poster Session

Session Title

Poster Session A

Track

Cost, Value, and Policy,Health Care Access, Equity, and Disparities,Patient Experience

Sub Track

Communication and Shared Decision-Making Research

Citation

J Clin Oncol 40, 2022 (suppl 28; abstr 252)

DOI

10.1200/JCO.2022.40.28_suppl.252

Abstract #

252

Poster Bd #

F21

Abstract Disclosures