A prototype mobile application to improve communication about symptom management.

Abstract Poster

Authors

Matthew LeBlanc

Matthew Roger LeBlanc

Duke University School of Nursing, Durham, NC

Matthew Roger LeBlanc, Thomas William LeBlanc, Sophia Kustas Smith

Organizations

Duke University School of Nursing, Durham, NC, Duke University Medical Center, Durham, NC, Duke University, Durham, NC

Research Funding

Other
Duke University Palliative Care Department, Duke University School of Nursing
Background:

Cancer patients report many physical and emotional symptoms which can go unreported and underestimated resulting in unmet needs. Research suggests systematic collection of symptom data is associated with decreased emergency department use, increased quality of life, treatment toleration and overall survival. The multiple myeloma (MM) patient population is noted to have high symptom burden and represent an important target for intervention. This project aimed to develop a prototype app to facilitate MM patient/clinician communication about symptom management.

Methods:

15 MM patients and 11 MM clinicians were interviewed to better understand patients’ symptom experience and management practices and preferences. Insights gained guided development of a prototype MM Coach mobile app. The think aloud protocol and cognitive interviewing were used to test usability and the prototype was iteratively refined.

Results:

Subjects highlighted a need for better symptom tracking over time, medication adherence tools, and real-time feedback to help patients self-manage symptoms. Our prototype app contains several modules designed to facilitate MM patient symptom management. 1) Track Symptoms; Using the Edmonton Symptom Assessment Scale patients track bothersome symptoms whenever they occur. 2) Track Medications; Patients can set up medication alerts and log medication use. 3) Track Mood; Patients record and track their distress level using the Distress Thermometer. 4) Relaxation Tools; This module contains a number of useful mind body activities such as guided imagery. 5) Get Support; Links to MM and non-MM related sources of support. 6) Prepare for Appointments; This module facilitates patients’ prioritizing issues to facilitate productive clinical encounters. 7) Insights; Patients and clinicians can review trends in symptom burden and medication adherence. 8) Learn; Educational content on topics relevant to MM symptoms such as pain, fatigue, depression.

Conclusions:

Our team is currently working with mobile app developers to build a version for the iOS AppStore and Android GooglePlay store. A pilot will be conducted to evaluate acceptability and feasibility in preparation for a clinical trial.

Disclaimer

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Abstract Details

Meeting

2019 Supportive Care in Oncology Symposium

Session Type

Poster Session

Session Title

Poster Session A

Track

Advance Care Planning,End-of-Life Care,Communication and Shared Decision Making,Integration and Delivery of Palliative and Supportive Care,Coordination and Continuity of Care,Caregiver Support,Biology of Symptoms and Treatment Toxicities,Disparities in Supportive Care

Sub Track

Communication and Shared Decision Making

Citation

J Clin Oncol 37, 2019 (suppl 31; abstr 27)

DOI

10.1200/JCO.2019.37.31_suppl.27

Abstract #

27

Poster Bd #

C9

Abstract Disclosures

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