University of Minnesota, Minneapolis, MN
Anne Hudson Blaes , Maysa M. Abu-Khalaf , Catherine M. Bender , Susan Faye Dent , Chunkit Fung , Sophia Kustas Smith , Samantha Watson , Sweatha Katta , Janette K. Merrill , Shawna V. Hudson
Background: Despite advancements in reimbursement, anecdotal evidence suggests patients are not able to access guideline concordant survivorship care services due to a lack of coverage by payers. We present the results of a mixed methods study aimed to determine the practice-reported rates and sources of delay/denial on evidence-based, guideline concordant survivorship care services. Methods: A quantitative survey was developed by ASCO’s Cancer Survivorship Committee (CSC) to assess which services are being denied by payers for coverage/reimbursement. Questions were limited to disease sites for which practice guidelines exist. 533 ASCO members who provide survivorship care were surveyed, with a focus on obtaining representation from rural/urban, academic/private practice, pediatric/adult, and geographic location across the U.S. Semi-structured telephone interviews were conducted in October and November 2020 with geographic sub sample representation to further explore the nature of and extent to which coverage barriers are experienced for guideline-concordant care, specific to the provider or clinic’s primary disease site or specialty. Results: 120 responses from 50 states were included. Respondents were primarily clinicians (88%) with the majority treating patients with Medicare/Medicaid/CHIP (60%), followed by private/employer insurance (38%). There was little issue with coverage of hormone therapies. One-third reported issues some of the time with maintenance chemotherapy (38%) and immunotherapy (35%). Coverage denials for screening for recurrence for breast cancer (MRI, 63.5%), Hodgkin Lymphoma (PET/CT 47%; Breast MRI, 44.4%), and lung cancer (Low-dose CT 37.4%) were common. Half of the survey respondents reported denials for supportive care/symptom management services (Table). Private or employer-based insurance denials were most often the source of barriers (57.7%). Through interviews, denials were found to be the same across sites and not unique to a single payer or region. Most had a process to appeal denials for evidence-based services. Conclusions: Denial for survivorship care, particularly supportive care services, is common. There is a need for better advocacy with payers, improved policy, and support for providers/practices to implement protocols to obtain coverage for services, particularly in the face of burnout.
Always | Most of the time | Neutral | Some of the time | Never | |
---|---|---|---|---|---|
Dexa scan* (n=117) | 0.9 | 6.0% | 6.0% | 44.4% | 33.3% |
Echocardiogram* (n=117) | 0.00% | 4.3% | 7.7% | 25.6% | 52.1% |
Fatigue assessment (n=118) | 3.4% | 17.8% | 12.7% | 39.8% | 21.2% |
Mental health services (n=117) | 1.7% | 11.1% | 18.0% | 32.5% | 27.4% |
Fertility services (n=117) | 5.1% | 18.0% | 13.7% | 40.2% | 14.5% |
Physical therapy (n=117) | 1.7% | 10.3% | 11.1% | 42.7% | 29.1% |
Occupational therapy (n=118) | 0.9% | 10.2% | 16.1% | 39.8% | 25.4% |
Dental evaluation* (n=116) | 3.5% | 19.0% | 14.7% | 31.0% | 20.7% |
Disclaimer
This material on this page is ©2024 American Society of Clinical Oncology, all rights reserved. Licensing available upon request. For more information, please contact licensing@asco.org
Abstract Disclosures
2023 ASCO Quality Care Symposium
First Author: Andrea Anampa-Guzmán
2020 ASCO Virtual Scientific Program
First Author: Archana Radhakrishnan
2024 ASCO Genitourinary Cancers Symposium
First Author: Siqi Hu
2022 ASCO Quality Care Symposium
First Author: Stijn Hentzen