Disparities between provider assessment and documentation of care needs in the care of adolescent and young adult patients with sarcoma.

Authors

null

Grace Eileen McKay

University of Wisconsin Carbone Cancer Center, Madison, WI

Grace Eileen McKay, Amanda Marie Parkes

Organizations

University of Wisconsin Carbone Cancer Center, Madison, WI

Research Funding

Other
University of Wisconsin-Madison School of Medicine and Public Health Shapiro Summer Research Program.

Background: Given the occurrence of cancer during a complex developmental time, adolescent and young adult (AYA) patients have unique psychosocial needs, necessitating supportive care guidelines including National Comprehensive Cancer Network (NCCN) AYA guidelines. We sought to assess compliance with NCCN AYA guidelines and compare to oncology provider identified AYA care needs. Methods: Retrospective chart review was performed on AYA patients (15-39 years) with sarcoma seen at least once in 2019 at the University of Wisconsin (UW), identifying documentation of discussions deemed critical per NCCN AYA guidelines. As per ASCO’s Quality Oncology Practice Initiative certification, we considered a threshold of 75% or higher to be compliant. Compliance was compared with an electronic survey of UW oncology providers regarding AYA patient needs, with items determined to have adequate resources if noted sufficient by >75% of providers. Results: We identified 43 AYA patients with sarcoma. As seen in table, <75% of patients had documentation regarding contraception, fertility, finances, genetics, social work referral and clinical trials indicating non-compliance. Surveys, completed by 38 oncology providers, showed significant discordance between provider’s perception of adequate access to resources and compliance on chart review. Conclusions: Disparities between oncology provider assessment of AYA care needs and lack of documentation of critical components of AYA patient care demonstrates the need for novel tools to evaluate AYA care needs beyond provider assessments. Care needs identified in our study will serve as the basis of an ongoing quality improvement project to better support AYA patients at UW.

Documented components of patient care versus provider perceptions of care needs.

AYA IssueCharts with Documentation (n=43)Chart Compliance
(>75% Documentation)
ResourcesProviders Perceiving Adequate Access to ResourcesProvider Determined
Adequate Resources (>75% Providers Noting Adequate Access to Resources)
Concordance Between Chart Compliance and Survey Identified Adequate Resources?
Contraception15 (35%)NSexual Health13/26 (50%)NY
Fertility17 (40%)NFertility Preservation/ Reproductive Health23/31 (74%)NY
School/Employment Status37 (86%)YSchool/ Employment9/25 (36%)NN
Finances9 (21%)NInsurance/ Financial Planning21/25 (84%)YN
Genetics10 (23%)NGenetics27/31 (87%)YN
Social Work25 (58%)NSocial Work29/33 (88%)YN
Clinical Trials15 (35%)NClinical Trials26/29 (90%)YN

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Abstract Details

Meeting

2020 ASCO Quality Care Symposium

Session Type

Poster Session

Session Title

On-Demand Poster Session: Quality, Safety, and Implementation Science

Track

Quality, Safety, and Implementation Science

Sub Track

Quality Improvement Research and Implementation Science

Citation

J Clin Oncol 38, 2020 (suppl 29; abstr 218)

DOI

10.1200/JCO.2020.38.29_suppl.218

Abstract #

218

Poster Bd #

Online Only

Abstract Disclosures

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