University of Wisconsin Carbone Cancer Center, Madison, WI
Grace Eileen McKay, Amanda Marie Parkes
Background: Given the occurrence of cancer during a complex developmental time, adolescent and young adult (AYA) patients have unique psychosocial needs, necessitating supportive care guidelines including National Comprehensive Cancer Network (NCCN) AYA guidelines. We sought to assess compliance with NCCN AYA guidelines and compare to oncology provider identified AYA care needs. Methods: Retrospective chart review was performed on AYA patients (15-39 years) with sarcoma seen at least once in 2019 at the University of Wisconsin (UW), identifying documentation of discussions deemed critical per NCCN AYA guidelines. As per ASCO’s Quality Oncology Practice Initiative certification, we considered a threshold of 75% or higher to be compliant. Compliance was compared with an electronic survey of UW oncology providers regarding AYA patient needs, with items determined to have adequate resources if noted sufficient by >75% of providers. Results: We identified 43 AYA patients with sarcoma. As seen in table, <75% of patients had documentation regarding contraception, fertility, finances, genetics, social work referral and clinical trials indicating non-compliance. Surveys, completed by 38 oncology providers, showed significant discordance between provider’s perception of adequate access to resources and compliance on chart review. Conclusions: Disparities between oncology provider assessment of AYA care needs and lack of documentation of critical components of AYA patient care demonstrates the need for novel tools to evaluate AYA care needs beyond provider assessments. Care needs identified in our study will serve as the basis of an ongoing quality improvement project to better support AYA patients at UW.
AYA Issue | Charts with Documentation (n=43) | Chart Compliance (>75% Documentation) | Resources | Providers Perceiving Adequate Access to Resources | Provider Determined Adequate Resources (>75% Providers Noting Adequate Access to Resources) | Concordance Between Chart Compliance and Survey Identified Adequate Resources? |
---|---|---|---|---|---|---|
Contraception | 15 (35%) | N | Sexual Health | 13/26 (50%) | N | Y |
Fertility | 17 (40%) | N | Fertility Preservation/ Reproductive Health | 23/31 (74%) | N | Y |
School/Employment Status | 37 (86%) | Y | School/ Employment | 9/25 (36%) | N | N |
Finances | 9 (21%) | N | Insurance/ Financial Planning | 21/25 (84%) | Y | N |
Genetics | 10 (23%) | N | Genetics | 27/31 (87%) | Y | N |
Social Work | 25 (58%) | N | Social Work | 29/33 (88%) | Y | N |
Clinical Trials | 15 (35%) | N | Clinical Trials | 26/29 (90%) | Y | N |
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