Caregiver burden: Empowering caregivers with shared decision-making strategies and skills to improve patient quality of life and outcomes.

Authors

Martha Raymond

Martha Ann Raymond

Raymond Foundation, Central Square, NY

Martha Ann Raymond, Margaret-Ann Simonetta

Organizations

Raymond Foundation, Central Square, NY, The Raymond Foundation, Charlestown, MA

Research Funding

Other
Raymond Foundation.

Background: Data from the National Cancer Institute’s Surveillance, Epidemiology & End Results (SEER 2016) program estimates there are 15.5 million cancer survivors in the United States who rely on cancer caregivers every day. Caregivers play an essential role throughout the care continuum greatly impacting a patient’s quality of survivorship. Methods: August 2019–March 2020 the Raymond Foundation hosted nationwide caregiver focus groups and an online survey. Primary goals were reaching caregivers and the patients they serve in rural, urban, and community oncology settings to gain perspective from diverse populations. Focus groups were held in person and online via video conferencing. Results: 1012 caregivers and the patients they care for (41% male, 59% female) participated in our focus groups and online survey: 92% reported a lack of educational resources necessary to participate in shared decision making regarding treatment protocol; 90% reported they lacked communication strategies required to effectively communicate with their healthcare team; 87% reported they would like to learn more about clinical trials but did not know where to start; 85% reported they did not feel comfortable reporting treatment adverse effects; 94% reported working toward a patient-centered, advocate based care approach would lead to enhanced quality of life and improved outcomes. Conclusions: Cancer caregivers and the patients they assist understand the importance of shared decision-making and patient centered care. Based on our focus groups and survey findings, our call to action includes developing the Cancer Caregiver Advocacy Plan. This unique educational resource will provide key information to address educational gaps and empower caregivers to become informed healthcare advocates. The Cancer Caregiver Advocacy Plan will be a companion resource to the Raymond Foundation’s 2018 Cancer Caregiver Action Plan as we continue to expand our education and outreach to minimize cancer burdens for patients and caregivers.

Disclaimer

This material on this page is ©2024 American Society of Clinical Oncology, all rights reserved. Licensing available upon request. For more information, please contact licensing@asco.org

Abstract Details

Meeting

2020 ASCO Quality Care Symposium

Session Type

Poster Session

Session Title

On-Demand Poster Session: Patient Experience

Track

Patient Experience

Sub Track

Caregiver Burden and Support

Citation

J Clin Oncol 38, 2020 (suppl 29; abstr 142)

DOI

10.1200/JCO.2020.38.29_suppl.142

Abstract #

142

Poster Bd #

Online Only

Abstract Disclosures

Similar Abstracts

Abstract

2022 ASCO Annual Meeting

Quality of life in caregivers of cancer patients in Colombia.

First Author: Daniela A. Castro-Martinez

First Author: Nicole Henderson