The development and implementation of a gynecologic cancer survivorship tool.

Authors

null

Jeanne Carter

Memorial Sloan Kettering Cancer Center, New York, NY

Jeanne Carter, Nadeem Abu-Rustum, Sally Saban, Ling Y. Chen, Andrew Vickers, Gabriela Billanti, Nicole A Connors, Vance Broach, Carol L. Brown, Dennis Chi, Ginger J. Gardner, Deborah J. Goldfrank, Elizabeth Lin Jewell, Mario M. Leitao, Kara C. Long-Roche, Jennifer Jean Mueller, Yukio Sonoda, Oliver Zivanovic

Organizations

Memorial Sloan Kettering Cancer Center, New York, NY, Memorial Sloan-Kettering Cancer Center, New York, NY, Memor Sloan-Kettering Cancer Ctr, New York, NY, Johns Hopkins School of Medicine, Baltimore, MD

Research Funding

U.S. National Institutes of Health
U.S. National Institutes of Health

Background: To assess the implementation and use of an electronic survivorship tool to enhance patient/clinician communication and intervention of survivorship concerns in women treated for gynecologic cancer. Methods: The clinical survivorship tool was developed using evidence-based data, multidisciplinary expert input, and patient feedback. The tool is composed of 17 questions encompassing 6 main categories: gynecologic health (abnormal bleeding/pain), lymphedema, vaginal/vulvar dryness, sexual health concerns, menopause (hot flushes, sleep difficulties), and bowel/urinary issues. The electronic tool was piloted and incorporated into clinic for endometrial and cervical cancer patients. Patients were introduced to the tool at their first postop visit and emailed an introduction form before their 3-month follow-up visit. The form could be completed at home or at the time of scheduled visit. Results: From 6/1/18 to 6/1/19, 1269 patients were eligible to complete at least one survivorship tool survey. Compliance rates increased over the year and reached 67% (1,015/1,525 assigned surveys completed) with the addition of clinic coordinator, staff and nurse training; the initiation of daily emails screening for survey respondents; clinic coordinator feedback and modification of screening emails; and the addition of nurses to daily screening emails. Of those who completed surveys between 01/1/19 and 06/1/19, the most common survivorship concerns noted were bowel (48%, n=484) and urinary function (35%,n=352) issues, menopausal symptoms such as trouble sleeping (33%, n=333) and hot flashes (25%, n=249), lower extremity symptoms (heaviness 17%, n=175; swelling 17%, n=171; numbness 17%, n=171), and vaginal dryness (26%, n=263), with actionable items of education and referrals, as needed. Conclusions: This survivorship tool enhanced the ability of healthcare providers to identify, monitor, and address survivorship concerns over the continuum of care. Patients and healthcare providers found this tool to be clinically feasible with potential to promote communication and education to enhance clinical care. Our multidisciplinary approach and training were key to implementation success.

Disclaimer

This material on this page is ©2024 American Society of Clinical Oncology, all rights reserved. Licensing available upon request. For more information, please contact licensing@asco.org

Abstract Details

Meeting

2019 Supportive Care in Oncology Symposium

Session Type

Poster Session

Session Title

Poster Session B

Track

Mental Health and Psychological Well-being,Psychosocial and Spiritual/Cultural Assessment and Management,Models of Care,Patient Reported Outcomes and Patient Experience,Prevention, Assessment, and Management of Disease and Treatment-related Symptoms,Prognostication ,Survivorship and Late Effects of Cancer

Sub Track

Patient Reported Outcomes and Patient Experience

Citation

J Clin Oncol 37, 2019 (suppl 31; abstr 98)

DOI

10.1200/JCO.2019.37.31_suppl.98

Abstract #

98

Poster Bd #

C3

Abstract Disclosures