Areas for quality improvement in pediatric supportive oncology services.

Authors

null

Jennifer Reichek

Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL

Jennifer Reichek, Christine B. Weldon, Eugene Suh, Julia Rachel Trosman, Stacy D. Sanford, Dipti Dighe, Rosa Berardi, Kim Downing, Daniel K. Choi, Betty Roggenkamp, Natasha Pillay Smiley, Melanie Brown, Erika D Owen, Rani Ganesan

Organizations

Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, Northwestern University Feinberg School of Medicine, Chicago, IL, Loyola University Medical Center, Maywood, IL, Center for Business Models in Healthcare, Chicago, IL, Northwestern University, Chicago, IL, John H. Stroger Jr. Hospital of Cook County, Chicago, IL, The Coleman Foundation, Chicago, IL, Greater Illinois Pediatric Palliative Coalition, Chicago, IL, University of Illinois at Chicago, Chicago, IL, Children's Minnesota, Minneapolis, MN, Rush University Medical Center, Chicago, IL

Research Funding

Other Foundation

Background: In 2013, the Institute of Medicine report recommended that supportive oncology services be initiated at time of diagnosis. Providers of pediatric cancer care in the Chicagoland community, supported by The Coleman Foundation, sought to define areas for quality improvement of supportive oncology delivery to children. Methods: Focus groups and surveys with clinicians providing pediatric cancer care and supportive services at 14 sites were used to prioritize areas needing improvement. Results: 100% (14/14) of sites participated. Of the eligible sites, 6 were pediatric cancer treatment sites and 8 cancer care community organizations. Sites demonstrated consistent agreement for 8 of the 12 areas of focus for improvement. Over 50% of sites reported areas of focus (table) as important or very important. Conclusions: Sites identified the need for quality improvement in delivery of psychosocial, survivorship and palliative care for pediatric cancer patients. Survey results demonstrate a need for collaboration and efforts to guide care delivery improvement across sites.

Areas of FocusImportant or Very Important
%
Would be nice
%
Not
Important
%
Being done
%
Standardize patient and family needs assessment (social, emotional, practical, family dynamics, financial, other)93700
Formal guidance on when specialized palliative care may be useful for patients/families851500
Palliative care specialty services in an outpatient setting (for outpatient consultations)85708
Formalize / increase support for emotional / distress needs in outpatient setting712900
Specific training (content) for all health professionals supporting pediatric cancer patients on palliative care, pain and symptom management712108
Formal guidance on when hospice consult is appropriate652807
Formalize / increase support for psychosocial needs in home setting505000
Identify expected vs. not expected (possibly preventable) hospitalizations504208
Explore why kids’ education needs are not met435700
Access to cognitive rehab services for patients435070
Patient / Family materials needed in languages other than English and Spanish3650140
Implement a standard clinical nutrition template for oncology outpatient visit3550150

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Abstract Details

Meeting

2017 Palliative and Supportive Care in Oncology Symposium

Session Type

Poster Session

Session Title

Poster Session A

Track

Integration and Delivery of Palliative and Supportive Care,Communication and Shared Decision Making,Symptom Biology, Assessment, and Management,Models of Care

Sub Track

Integration and Delivery of Palliative and Supportive Care

Citation

J Clin Oncol 35, 2017 (suppl 31S; abstract 146)

DOI

10.1200/JCO.2017.35.31_suppl.146

Abstract #

146

Poster Bd #

F8

Abstract Disclosures

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